I belong to a generation of women who know they have dangerous BRCA mutations, but our options to reduce cancer risk are agonizing.
I certainly hope for a different future for my children where we have the freedom and agency to change our own futures.
Written by KJ Surkan. Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD […]
This past weekend I spoke an amazing conference called Medicine X. My goal at this conference was to explore […]
What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]
When googled – the phrase no data about me without me seems to have many more search results coming Europe […]
Ever heard the term ‘citizen scientist’? First…here’s a working definition of what the heck it means. Citizen Science: […]
On March 13th I had the chance to do something I have never done before. I attended a […]
There was a time not so long ago when the best minds in the world were debating over […]
A *crafty* explanation of how cancer cells behave….complete with yarn, buttons, and patchwork! In the middle of the […]
I’m thinking about the burden of navigating decisions that come with BRCA today, after reading this article from […]
Why are the words we choose to describe ourselves so important? Last week, I had a good conversation […]
This past week, I attended a conference called Partnering for Cures. It was a weird and interesting experience […]
The following is a guest post from the Nina Wible, mother, wife and advocate for women who are […]
Teri Smieja is the co-author of the soon to be released book: “Letters to Doctors” (The BRCA and […]
Tonight I met with filmmaker Joanna Rudnick and Founder of Genetic Alliance Sharon Terry to ask questions about […]
It’s been such an exciting couple of weeks! Where do I begin? After the landmark Supreme Court Ruling […]
Recently I spent a wonderful afternoon sharing stories with friends who are also facing BRCA here in Northern […]
I just watched this video from the late Steve Jobs, and it made me think about informed consent […]
So….Tuesday at 3pm I was sitting around in a coffee stained t-shirt, blogging and tweeting. And I got […]
The following is a guest post from Ellen Matloff, Director of the Cancer Genetic Counseling Program at Yale University. […]
April 15th started out for me with excitement and nerves. After weeks of preparation, I showed up […]
The following post is by Shannon Davis Litchy, attorney, breast cancer survivor, and mom. Follow her on twitter […]
Rather than a single cure for cancer, consider that the future holds a whole range targeted gene therapies tailored for […]
Over the past year I have had more than my fair share of visits with doctors as a […]
Here we share the story of how Andrea Downing and Fred Trotter discovered one of the most dangerous health data security vulnerabilities in history. As of June 29th, this vulnerability has been fixed, which is why we can now talk about it.
And once again, life as a previvor has made the experience a little different for me and I thought I would share what I’ve learned about starting a family after a mastectomy.
From Awareness to Action: A Petition Calling on Myriad Genetics to Free the Data by KJ Surkan, PhD It’s […]
KJ Surkin got this petition on Change.org set up and ready to go. For information on what this petition […]
It’s National Previvor Day. I had to catch myself after posting ‘Happy National Previvor Day!’ on Facebook. Don’t get […]