I belong to a generation of women who know they have dangerous BRCA mutations, but our options to reduce cancer risk are agonizing.
I certainly hope for a different future for my children where we have the freedom and agency to change our own futures.
Written by KJ Surkan. Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD […]
This past weekend I spoke an amazing conference called Medicine X. My goal at this conference was to explore […]
What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]
When googled – the phrase no data about me without me seems to have many more search results coming Europe […]
Ever heard the term ‘citizen scientist’? First…here’s a working definition of what the heck it means. Citizen Science: […]
On March 13th I had the chance to do something I have never done before. I attended a […]
There was a time not so long ago when the best minds in the world were debating over […]
A *crafty* explanation of how cancer cells behave….complete with yarn, buttons, and patchwork! In the middle of the […]
I’m thinking about the burden of navigating decisions that come with BRCA today, after reading this article from […]
Why are the words we choose to describe ourselves so important? Last week, I had a good conversation […]
This past week, I attended a conference called Partnering for Cures. It was a weird and interesting experience […]
The following is a guest post from the Nina Wible, mother, wife and advocate for women who are […]
Teri Smieja is the co-author of the soon to be released book: “Letters to Doctors” (The BRCA and […]
Tonight I met with filmmaker Joanna Rudnick and Founder of Genetic Alliance Sharon Terry to ask questions about […]
It’s been such an exciting couple of weeks! Where do I begin? After the landmark Supreme Court Ruling […]
Recently I spent a wonderful afternoon sharing stories with friends who are also facing BRCA here in Northern […]
I just watched this video from the late Steve Jobs, and it made me think about informed consent […]
So….Tuesday at 3pm I was sitting around in a coffee stained t-shirt, blogging and tweeting. And I got […]
The following is a guest post from Ellen Matloff, Director of the Cancer Genetic Counseling Program at Yale University. […]
April 15th started out for me with excitement and nerves. After weeks of preparation, I showed up […]
The following post is by Shannon Davis Litchy, attorney, breast cancer survivor, and mom. Follow her on twitter […]
Rather than a single cure for cancer, consider that the future holds a whole range targeted gene therapies tailored for […]
Over the past year I have had more than my fair share of visits with doctors as a […]
There is no excerpt because this is a protected post.
And once again, life as a previvor has made the experience a little different for me and I thought I would share what I’ve learned about starting a family after a mastectomy.
From Awareness to Action: A Petition Calling on Myriad Genetics to Free the Data by KJ Surkan, PhD It’s […]
KJ Surkin got this petition on Change.org set up and ready to go. For information on what this petition […]
It’s National Previvor Day. I had to catch myself after posting ‘Happy National Previvor Day!’ on Facebook. Don’t get […]