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Category Archive: Be Your Own Advocate

Most people don’t understand what the term ‘Previvor’ means. It is our goal to make sure that patients faced with tough decisions after genetic testing have a voice, and resources available to them.

Breastfeeding after a Mastectomy

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And once again, life as a previvor has made the experience a little different for me and I thought I would share what I’ve learned about starting a family after a mastectomy.

Andrea Downing May 15, 2016 Be Your Own Advocate, ePatient, Starting A Family

From Awareness to Action: A Petition Calling on Myriad Genetics

From Awareness to Action: A Petition Calling on Myriad Genetics to Free the Data by KJ Surkan, PhD It’s […]

Andrea Downing October 11, 2015 Be Your Own Advocate, Beyond Awareness, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Flying my Previvor / BRCActivist flag at Medicine X

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It’s National Previvor Day.  I had to catch myself after posting ‘Happy National Previvor Day!’ on Facebook.  Don’t get […]

Andrea Downing October 1, 2015 Be Your Own Advocate, BRCA, Data Sharing, ePatient

Say Anything

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  Have you ever wondered if your fear of looking dumb is holding you back from doing amazing […]

Andrea Downing September 21, 2015 Be Your Own Advocate, Beyond Awareness, BRCA, BRCA / Technology, ePatient

Could this be a roadmap for fixing your broken BRCA gene?

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I belong to a generation of women who know they have dangerous BRCA mutations, but our options to reduce cancer risk are agonizing.  

I certainly hope for a different future for my children where we have the freedom and agency to change our own futures.

Andrea Downing July 10, 2015 Be Your Own Advocate, BRCA, BRCA / Technology, ePatient, Precision Medicine

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