Skip to content

Brave Bosom

Life from a Previvor's Perspective
Main navigation
  • About Us: We Are Community Data Organizers
    • Work with the BRCA Community
  • Blog
    • Dealing With Uncertainty
    • BRCA1 Mutation: Do you have C61G?
    • Navigating Decisions
    • Data Sharing
    • BRCA Information & Experiences
  • BRCA | Technology
  • As Seen In…

Category Archive: Be Your Own Advocate

Most people don’t understand what the term ‘Previvor’ means. It is our goal to make sure that patients faced with tough decisions after genetic testing have a voice, and resources available to them.

The White House unveils new Precision Medicine Initiative. ePatients and BRCA are front and center.

B B Read More

It’s been a big week for the BRCA Community.  On the heels of Myriad’s announcement to stop disputing […]

Andrea Downing January 31, 2015 Be Your Own Advocate, BRCA, ePatient

The REAL Story of Mary-Claire King

B B Read More

I always think of Mary-Claire King as this heroic figure who probably never struggled to become a great […]

Andrea Downing November 20, 2014 Be Your Own Advocate, ePatient

Population-wide access to BRCA Testing: Are we ready?

B B Read More

Written by KJ Surkan.  Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD […]

Andrea Downing September 30, 2014 Be Your Own Advocate, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Medicine X: The anatomy of a big decision is complex.

B B Read More

This past weekend I spoke an amazing conference called Medicine X.  My goal at this conference was to explore […]

Andrea Downing September 16, 2014 Be Your Own Advocate, BRCA, ePatient, Navigating Decisions

Myriad tries to spin genetic profiteering with informational “PSA”

Since the posting of this new “informational” PSA from the company that formerly held a patent on BRCA1 […]

Andrea Downing June 30, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing

Posts navigation

Previous 1 2 3 4 … 8 Next
Website Powered by WordPress.com.
Footer navigation
  • ePatient
  • BRCA Facts
  • BRCA Facts
    • BRCA Related Posts
    • Precision Medicine
    • Body Image
  • About Us: We Are Community Data Organizers
  • About Us: We Are Community Data Organizers
Secondary navigation
  • Search

Begin typing your search above and press return to search. Press Esc to cancel.

  • Follow Following
    • Brave Bosom
    • Join 2,082 other followers
    • Already have a WordPress.com account? Log in now.
    • Brave Bosom
    • Customize
    • Follow Following
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...