What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]
Category Archive: Be Your Own Advocate
Most people don’t understand what the term ‘Previvor’ means. It is our goal to make sure that patients faced with tough decisions after genetic testing have a voice, and resources available to them.
When googled – the phrase no data about me without me seems to have many more search results coming Europe […]
Ever heard the term ‘citizen scientist’? First…here’s a working definition of what the heck it means. Citizen Science: […]
Congressional Briefing on DNA Patents (a.k.a the post about my right to interpret my genome sequence into poetry)
On March 13th I had the chance to do something I have never done before. I attended a […]
It has been quite a week in the genetic data geek-o-sphere! There are three big stories happening right […]