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Category Archive: BRCA

Medicine X: The anatomy of a big decision is complex.

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This past weekend I spoke an amazing conference called Medicine X.  My goal at this conference was to explore […]

Andrea Downing September 16, 2014 Be Your Own Advocate, BRCA, ePatient, Navigating Decisions

Myriad tries to spin genetic profiteering with informational “PSA”

Since the posting of this new “informational” PSA from the company that formerly held a patent on BRCA1 […]

Andrea Downing June 30, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing

Happy Genome-aversary!

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Today marks the 14th anniversary of this announcement of the human genome project.  Happy human genome-aversary!

Andrea Downing June 26, 2014 BRCA

It’s a great time to be a BRCActivist.

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What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]

Andrea Downing June 18, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing, ePatient, Precision Medicine

Health Datapalooza: No Data About Me Without Me.

When googled – the phrase no data about me without me seems to have many more search results coming Europe […]

Andrea Downing June 4, 2014 Be Your Own Advocate, BRCA, BRCA / Technology, Data Sharing, ePatient

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