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Category Archive: Data Sharing

From Awareness to Action: A Petition Calling on Myriad Genetics

From Awareness to Action: A Petition Calling on Myriad Genetics to Free the Data by KJ Surkan, PhD It’s […]

Andrea Downing October 11, 2015 Be Your Own Advocate, Beyond Awareness, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Myriad Genetics: Give Us OUR Damn BRCA Data!

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KJ Surkin got this petition on Change.org set up and ready to go. For information on what this petition […]

Andrea Downing October 7, 2015 BRCA / Technology, Data Sharing

Flying my Previvor / BRCActivist flag at Medicine X

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It’s National Previvor Day.  I had to catch myself after posting ‘Happy National Previvor Day!’ on Facebook.  Don’t get […]

Andrea Downing October 1, 2015 Be Your Own Advocate, BRCA, Data Sharing, ePatient

Population-wide access to BRCA Testing: Are we ready?

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Written by KJ Surkan.  Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD […]

Andrea Downing September 30, 2014 Be Your Own Advocate, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Myriad tries to spin genetic profiteering with informational “PSA”

Since the posting of this new “informational” PSA from the company that formerly held a patent on BRCA1 […]

Andrea Downing June 30, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing

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