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Category Archive: Data Sharing

It’s a great time to be a BRCActivist.

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What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]

Andrea Downing June 18, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing, ePatient, Precision Medicine

Health Datapalooza: No Data About Me Without Me.

When googled – the phrase no data about me without me seems to have many more search results coming Europe […]

Andrea Downing June 4, 2014 Be Your Own Advocate, BRCA, BRCA / Technology, Data Sharing, ePatient

Congressional Briefing on DNA Patents (a.k.a the post about my right to interpret my genome sequence into poetry)

On March 13th I had the chance to do something I have never done before. I attended a […]

Andrea Downing March 20, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing, ePatient

We need a BRCA Commons.

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There was a time not so long ago when the best minds in the world were debating over […]

Andrea Downing January 28, 2014 Beyond Awareness, BRCA, Data Sharing, ePatient

FDA B*tchslap of 23andMe: A BRCA Previvor’s Perspective

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Yesterday, the nerd interwebs exploded with news of the FDA’s Warning Letter to 23andMe. For those of you reading […]

Andrea Downing November 26, 2013 BRCA / Technology, Data Sharing

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