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Category Archive: Data Sharing

BRCA Mutations Made Simple

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Teri Smieja is the co-author of the soon to be released book: “Letters to Doctors” (The BRCA and […]

Andrea Downing August 28, 2013 Data Sharing, ePatient, Navigating Decisions, Precision Medicine

Welcome to the Wild West of BRCA Data Sharing…..

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It’s been such an exciting couple of weeks!  Where do I begin?  After the landmark Supreme Court Ruling […]

Andrea Downing July 21, 2013 BRCA, Data Sharing

Gene Patents make it to the Daily Show!

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http://media.mtvnservices.com/embed/mgid:cms:video:thedailyshow.com:427282 The Daily Show with Jon Stewart Get More: Daily Show Full Episodes,Indecision Political Humor,The Daily Show on […]

Andrea Downing June 21, 2013 Data Sharing, Levity

Privacy means people know what they’re signing up for in plain English.

I just watched this video from the late Steve Jobs, and it made me think about informed consent […]

Andrea Downing June 5, 2013 BRCA / Technology, Data Sharing

Want to change your future? Here is some career advice for Young Previvors.

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The following is a guest post from Ellen Matloff, Director of the Cancer Genetic Counseling Program at Yale University. […]

Andrea Downing April 30, 2013 Be Your Own Advocate, Data Sharing

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