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Category Archive: ePatient

Affordable access to a new genetic test for cancer.

A few short years ago, I had no clue how fast things would change for the Previvor Community when I […]

Andrea Downing April 21, 2015 BRCA / Technology, ePatient

The White House unveils new Precision Medicine Initiative. ePatients and BRCA are front and center.

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It’s been a big week for the BRCA Community.  On the heels of Myriad’s announcement to stop disputing […]

Andrea Downing January 31, 2015 Be Your Own Advocate, BRCA, ePatient

The REAL Story of Mary-Claire King

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I always think of Mary-Claire King as this heroic figure who probably never struggled to become a great […]

Andrea Downing November 20, 2014 Be Your Own Advocate, ePatient

Population-wide access to BRCA Testing: Are we ready?

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Written by KJ Surkan.  Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD […]

Andrea Downing September 30, 2014 Be Your Own Advocate, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Medicine X: The anatomy of a big decision is complex.

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This past weekend I spoke an amazing conference called Medicine X.  My goal at this conference was to explore […]

Andrea Downing September 16, 2014 Be Your Own Advocate, BRCA, ePatient, Navigating Decisions

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