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Category Archive: Precision Medicine

From Awareness to Action: A Petition Calling on Myriad Genetics

From Awareness to Action: A Petition Calling on Myriad Genetics to Free the Data by KJ Surkan, PhD It’s […]

Andrea Downing October 11, 2015 Be Your Own Advocate, Beyond Awareness, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Could this be a roadmap for fixing your broken BRCA gene?

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I belong to a generation of women who know they have dangerous BRCA mutations, but our options to reduce cancer risk are agonizing.  

I certainly hope for a different future for my children where we have the freedom and agency to change our own futures.

Andrea Downing July 10, 2015 Be Your Own Advocate, BRCA, BRCA / Technology, ePatient, Precision Medicine

Population-wide access to BRCA Testing: Are we ready?

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Written by KJ Surkan.  Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD […]

Andrea Downing September 30, 2014 Be Your Own Advocate, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

It’s a great time to be a BRCActivist.

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What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]

Andrea Downing June 18, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing, ePatient, Precision Medicine

BRCA Mutations Made Simple

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Teri Smieja is the co-author of the soon to be released book: “Letters to Doctors” (The BRCA and […]

Andrea Downing August 28, 2013 Data Sharing, ePatient, Navigating Decisions, Precision Medicine

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