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Category Archive: Beyond Awareness

From Awareness to Action: A Petition Calling on Myriad Genetics

From Awareness to Action: A Petition Calling on Myriad Genetics to Free the Data by KJ Surkan, PhD It’s […]

Andrea Downing October 11, 2015 Be Your Own Advocate, Beyond Awareness, BRCA / Technology, Data Sharing, ePatient, Precision Medicine

Say Anything

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  Have you ever wondered if your fear of looking dumb is holding you back from doing amazing […]

Andrea Downing September 21, 2015 Be Your Own Advocate, Beyond Awareness, BRCA, BRCA / Technology, ePatient

Myriad tries to spin genetic profiteering with informational “PSA”

Since the posting of this new “informational” PSA from the company that formerly held a patent on BRCA1 […]

Andrea Downing June 30, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing

It’s a great time to be a BRCActivist.

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What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer […]

Andrea Downing June 18, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing, ePatient, Precision Medicine

Congressional Briefing on DNA Patents (a.k.a the post about my right to interpret my genome sequence into poetry)

On March 13th I had the chance to do something I have never done before. I attended a […]

Andrea Downing March 20, 2014 Be Your Own Advocate, Beyond Awareness, BRCA, Data Sharing, ePatient

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